Useful links

The following sites are a great source of further support or information for families and young people.

A Day of Sunshine

A Lancashire based charity that can provide local ill or disabled children and their families, who are on a low income or receiving benefits, an all-expenses paid holiday to Spain or the UK. Families must be a resident in Lancashire or Cumbria. 

Act Foundation

Supply grants for equipment to individuals to help with the equality of life for people with a disability.

Arthritis Care information for Young people

Aims to equip families of kids with arthritis with research based information about how to live with arthritis

Arthritis Kids Unite

A group for young people with JIA in County Durham, set up by Jordy who has JIA. For up to date information on meetings, click on the link above and join their group.

ARUK guide for teenagers with arthritis

A guide for people aged 13 - 20 with arthritis

Arthur's place

Supporting young people with arthritis.

British Society for Paediatric and Adolescent Rheumatology (BSPAR)

British Society for Paediatric and Adolescent Rheumatology is a specialist forum for Adolescent Rheumatology professionals - BSPAR

Cash for Kids

Cash for Kids provides grants for individual children from birth to 18 who are ill, disabled, underprivileged or need extra help. 

Children's Chronic Arthritis Association (CCAA)

The CCAA offer practical help and support and various educational and recreational opportunities for children with JIA.

Contact a Family

Support and advice to parents of children with a serious disability.

Elifar

Elifar is a charity that help to make a child with a disability feel more comfortable by supplying a grant to help with mobility.

Family Holiday Association

A national charity dedicated to providing day trips and holidays for families who are struggling with problems such as long-term illness and disabilities.

Glasspool Charity Trust

Glasspool Charity Trust supply small, one off grants to individuals and families who are experiencing hardship and need financial support.

Happy Days

Happy days are devoted to providing breaks for individuals, families and groups that support children with additional needs. Happy Days fund a range of holidays and day trips.

Home-Start

Provide support and friendship for families.

The Imago Community

The Community are an organisation that provides short breaks across Kent providing opportunities for disabled children and young people to enjoy a short break where they can meet and make friends with other children, as well as offering a valuable break for their parents of carers.

Imogen's Wish Blog

Read about 3 year old Imogen's journey with JIA. 

Independence at Home

A charity that provides grants to people, including children, who have physical or learning disabilities or a long-term illness and are in financial need.

Kids like Us

Supporting children, young people and families affected by juvenile arthritis within the West Midlands

Kingston Centre for Independent Living

Th centre manages a holiday grant on behalf of Kingston council to help those who are struggling with the costs for a holiday.

Medical Conditions At School 

Did you know that schools in England have a duty to support children with medical conditions? The Health Conditions in Schools Alliance is made up of 35 organisations representing over 1.1 million children living with over 20 medical conditions. They work collaboratively to ensure children with medical conditions get the support they need at school.

Olivia’s Vision

Offers information and support on uveitis.

Over the Wall

Over the Wall runs camp that allows children and young people aged between 8-17 who are suffering with an illness or disability to have fun in a range of activities at no cost.

Panicky Parent 

Informational blog written for families in panic or calm, dealing with kids, sick or well.

Pediatric Musculoskeletal Matters (PMM) 

The PMM team is led by Professor Helen Foster as a collaboration between Newcastle University and Northumbria University. For more information, visit their website by clicking on the title.

Printo UK

Provides information on paediatric, rheumatic diseases.

Psoriasis Association

Psoriasis  - dealing with it!

Scottish Network for arthritis in children (SNAC)

The SNAC provide a support network in Scotland for children with arthritis and their families, offering information and support.

Strongbones

Set up to help children with bone conditions

The Children's Hope Foundation

Aims to improve the quality of life for children and young people aged between 3-17 who are affected by illness, disability and poverty by supplying a grant for equipment your child may need or for a holiday and day out for the whole family to enjoy.

The Family Fund

The family Find give grants to low income families with a child under the age of 16, who is severely disabled. The grant may be used for holidays or leisure activities.

The Sick Children's Trust

To support and promote sick childrens’ recovery

Trefoil House

Trefoil House provides holiday grants for children under the age of 18 who have special needs or disabilities.

Turn2us

This website allows families with ill or disabled children to search local charities that can supply grants using the postcode search.

Uveitis Information Group (UIG)

Offers information and support for patients with uveitis

Your Rheum

A group for 11 to 24 year olds across the UK with diagnosed rheumatic conditions to advise, input and shape current adolescent and young adult rheumatology research.