Services in Scotland
Children living in Scotland who have JIA are looked after by local teams working as part of SPARN (Scottish Paediatric and Adolescent Rheumatology Network) which is a network of health professionals involved in caring for children who have all kinds of rheumatological conditions.
Each NHS Board area in Scotland has a SPARN supported service. This means there is a multi-disciplinary team made up of a paediatrician with an interest in Paediatric Rheumatology, a specialist nurse and a specialist physiotherapist running a service just for children and young people who have JIA.
Each of these services is supported by a named Paediatric Rheumatologist from either the Royal Hospital for Sick Children (Yorkhill Hospital) in Glasgow or the Royal Hospital for Sick Children in Edinburgh and through these teams your child can also be referred to other health professionals who may be involved in their care for example:
- ophthalmologist (eye screening and care)
- occupational therapist
- orthotist (a specialist who provides a range of splints, braces and special footwear to help your child’s mobility, correct your child’s gait and relieve discomfort if needed)
- radiologist (for X-rays and MRI/ultrasound scans) and
- adult services for when your child begins to move from paediatric to adult care services.
The way the service is organised varies between each Board area but your team will explain how to access these and provide you with appropriate contact numbers/details.
Your child will be seen regularly in an outpatient clinic (for example, 3-4 times a year and more often if the condition is unstable). They will also have access to nursing and physiotherapy support when this is needed as well as regular eye screening appointments with the ophthalmologist (if this is indicated). You will also receive written information on your child’s condition and any medications they have been prescribed.
We work closely with SNAC (Scottish Network for Arthritis in Children); an organisation set up by parents to support and help families of children affected by arthritis) who have representatives on the SPARN Steering Group and have developed links with a number of other Charities involved in the support of children who have arthritis and their families including JIA-at-NRAS, Arthritis Care and The Teapot Trust.