24 May 2017
Over 1 million pupils live with long term medical conditions in the UK! The Health Conditions in School Alliance (HSA) is working hard to make sure these children get the right care and support they need in school. We are a proud member of the HSA and work with them regularly to improve support for people with JIA in schools.
13 Apr 2017
This year the event was held at the Athenaeum, an 18th Century building right on the main square in Bury St Edmunds. The afternoon included lots of fun craft activities for the children and young people and a photo booth, while the parents and relatives who came along attended informative sessions with a host of Healthcare Professionals (HCPs) from the East of England’s Paediatric rheumatology team.
13 Mar 2017
no phone zone is a concept created to stimulate discussion amongst like-minded individuals who are concerned about the potential negative impact that smartphone overuse could have in our homes
2 Mar 2017
On Monday this week I visited officials at the Department of Education in London, together with colleagues from the Health Conditions in School Alliance (HCSA), to share their communication expertise and to discuss possible plans for them to endorse and promote a video the HCSA has produced.
29 Jul 2016
This year we held our Annual Family Fun Day in a different venue and in a rather beautiful part of the country and not only did we delight in some amazing northern hospitality but also fantastic Yorkshire sunshine.
6 May 2016
NRAS have had a fun morning supporting Lynette and friends (founders of Wear Purple For JIA) by donning anything purple we could get our hands on, including wigs, t-shirts and bras! We are very proud that #WearPurpleForJIA 2016 is supporting us and have been overwhelmed by the commitment of so many families and schools to support this day. Thank you!
A Wantage GP is undertaking the biggest bike ride in the UK inspired by a nine-year-old boy with JIA5 May 2016
Inspired by a nine-year old boy Alec, a Wantage GP (Vineet) is undertaking the biggest bike ride in the UK to raise funds for JIA-at-NRAS and awareness of JIA.
18 Mar 2016
NRAS is delighted to announce that the #WearPurpleforJIA 2016 Campaign has chosen to support NRAS as their charity for the year.
7 Mar 2016
The East of England Family Fun Day on Saturday February 27th saw families come together, and whilst the children and young people had fun with the photo booth and craft tables, their parents and carers listened to presentations by rheumatology experts and took part in Q & A sessions on JIA, education and service development.
2 Mar 2016
A study led by researchers at the Albert Einstein College of Medicine and the Children’s Hospital at Montefiore, in New York, has identified a human protein called transthyretin (TTR) that causes an autoimmune reaction in the joints of JIA patients.