News

Department for Education update to guidance on Arranging education for children who cannot attend school because of health needs

Department for Education update to guidance on Arranging education for children who cannot attend school because of health needs We are a proud member of the HCSA (health conditions in schools alliance) and work with them regularly to improve support for people living with JIA in schools. The government has issued Statutory Guidance supporting arranging educational provision for children who are unable […]

News, 05 Jun

JIA Awareness Week 2023 (3-7 July)

The National Rheumatoid Arthritis Society (NRAS) is proud to announce the launch of 2023’s Juvenile Idiopathic Arthritis Awareness Week (JIA AW). JIA-at-NRAS started JIAAW in 2022 with the aim to raise the awareness of the condition by educating and informing friends, family, employers and the general population about what juvenile idiopathic arthritis (JIA) is and […]

News, 16 May

The CAM-Pain Study

Exploring child and adolescent musculoskeletal pain: a qualitative study This project is to find out from children and young people what it is like to have sore and painful muscles and joints. Keele University are trying to work out how children, young people and parents would like the pain to be managed and what information […]

News, 21 Apr

Health and Social Care Secretary statement on Covid-19 vaccination of at-risk children aged 6 months to 4 years

Following advice from the Joint Committee on Vaccination and Immunisation (JCVI) on Covid-19 vaccinations of at-risk children aged 6 months to 4 years, the Health and Social Care Secretary Steve Barclay has issued a statement formally accepting it. The JCVI advises that children aged 6 months to 4 years in a clinical risk group should […]

News, 29 Mar

Attention all caregivers of children with rheumatic diseases!

The Global Rheumatology Alliance just launched a new 2023 GRA COVID-19 Pediatric Survey to learn more about the experiences of children with rheumatic diseases regarding COVID-19 infection and its effects, and decisions and experiences with the pediatric COVID-19 vaccines. Everyone is welcome, no matter where you are in the world! The survey is available in multiple languages. […]

News, 07 Feb

Research Study Opportunity – How do you bounce back from JIA pain?

Looking to understand how to bounce back from JIA pain

News, 30 Aug

Recruitment for a JIA Workshop

NRAS have been working with Nordic Pharmaceutical company and Open Health on research to explore the experience of living with JIA from a child’s perspective, so it can help us to understand what patient choice and patient preference look like for a child. By exploring their experience and their current needs it will help us […]

News, 16 Aug

JCVI advice on COVID-19 vaccines for autumn booster programme

On the 16th of August 2022 the Joint Committee on Vaccination and Immunisation (JCVI) published further advice for the roll out of the COVID-19 autumn booster programme. In this they discuss which of the vaccines should be utilised in the autumn boosters administration. They do highlight that all vaccines being used for boosters offer good protection […]

News, 28 Jul

Imagined Futures Opportunity for August!

Are you a young person aged 11-15 with Juvenile Idiopathic Arthritis (JIA)? Are you interested in learning more about filmmaking and storytelling? We are delighted to offer summer online workshops for the Imagined Futures Project. Are you a young person aged 11-15 with Arthritis (JIA)? Are you interested in learning more about filmmaking and storytelling? […]

News, 18 Jul

COVID-19 vaccination programme for Autumn 2022

The Joint Committee on Vaccination and Immunisation (JCVI) has recently provided updated guidance on the roll out of the autumn COVID-19 booster vaccine programme. Their advice follows on from data suggesting that “large proportions of the UK population have developed at least partial immunity against COVID-19.” This has led to their guidance focusing on protection of those […]

How can we help?