For Parents

This page has information to help you to support you and your child manage their JIA in school.

JIA can impact a child’s education in many different ways. We therefore felt it was important to address this issue as a priority in structuring our support services for families. In primary schools, parents have significantly more involvement and more opportunity to interact with teaching staff than is the case in secondary education. So if your child has JIA, as a parent you are more easily able to talk to staff about the needs of your child, however once they transition into secondary education this is not the case in the same way. We therefore felt that providing information and support to parents and young people about dealing with JIA at the start of secondary education in year 7 whilst still at primary was the most appropriate place to start with our ‘education packages’.

There are different challenges in each of the key age groups for children and young people and we will be addressing nursery/primary/6th form and university education stages in due course.

Managing JIA in School - For teachers, school staff and parents

Managing JIA in School Front CoverA guide for everyone who works in an educational setting with children 10 years old and above and for parents/carers who have education-related questions. 

It is currently only available to download as a PDF. However, if you do require a hard copy, please get in touch with Anne at anne@nras.org.uk to see if an exception can be made.  

Order free copy

 

 


Health Conditions in Schools Alliance

Did you know that schools in England have a duty to support children with medical conditions? The Health Conditions in Schools Alliance is made up of 35 organisations representing over 1.1 million children living with over 20 medical conditions. They work collaboratively to ensure children with medical conditions get the support they need at school. JIA-at-NRAS is proud to be a part of this Alliance.

JIA Letter for Schools

Parents are often concerned that teachers don’t understand what it means if a child has Juvenile Idiopathic Arthritis (JIA) and how it can affect their child in the classroom.  Download this letter which you can adapt accordingly and give to your child’s teacher(s)/school which explains how JIA can impact on daily school life.

Children with special educational needs (SEN)

This document provides information on the support your child can receive in relation to special educational needs (SEN) support and education, health and care plan (EHC)  as well as how to request an EHC assessment. It also provides information on personal budgets which parents may be entitled to if their child has an SEN and/or EHC and or have been told they need an EHC.

SENDirect

SENDirect has worked in partnership with other organisations to bring together and create information that may help to support the young person and their family.  Information is divided into the sections listed as follows:

My child's needsInformation and resources on conditions, development and support.

What my family is entitled toThis section contains information on the new changes in legislation and your rights under existing laws. The site provides an overview of the changes, plus further resources such as downloadable leaflets and template legal letters you can use.

Managing a personal budgetGuides on hiring people to assist you, choosing quality services and other useful resources.

Special educational needs and disability code of practice: 0 to 25 years

This document is a good document to look at as the starting point for parents with children and for young people themselves who have JIA and who are in the education system. It relates to children and young people with special educational needs (SEN) and disabled children and young people. A ‘young person’ in this context is a person over compulsory school age and under 25. Compulsory school age ends on the last Friday of June in the academic year in which they become 16. It is a long document but is headlined so you can read the points relevant to you and your child.

Bullying at school

Information on what to do if your child is bullied in and outside school in relation to the law and reporting.