Your Stories

  • Tips and tricks to taking medication

    My daughter is 2 and we have a terrible time with getting her to take the anti-sickness medicine (Ondansetron syrup) that she needs after methotrexate injections.

  • Still living with JIA

    25/03/05: Dr Carrie Britton Phd, MSc, Dip COT, SROT - In 1992 we were just getting used to the delights of our new baby Ruth when our other usually playful, giggly daughter, Bethany then aged two, began to change. She slowly lost interest in her toys, her food and even Thomas the Tank Engine. She grew withdrawn and easily upset over the smallest thing. She cried whenever we went out to the park or shops. It had to be more than just reacting to her new sister’s arrival.

  • Taplow Revisited

    Taken from 2 articles written for us by Lynda in 2003 and 2010: Lynda Sisson

  • My Experience of JIA

    My name is Ellie Potter and I am 14 years old. I was diagnosed with JIA in November 2009. Taken from: NRAS magazine, Autumn 2011 Ellie reflects on being diagnosed with JIA in 2009 (aged 12) and how she has lived with it since

  • A Parent's Story

    27/05/04: Michael Viksna- As a family, we had already suffered a devastating blow when our daughter Katie was diagnosed as having diabetes. However, she coped with the changes it meant extremely well, her treatment had started to work and we were all proud of the way she insisted that the illness had to fit into her lifestyle, and not the other way round.

  • Mark's story

    Exhausted. Perhaps not the most eloquent way to introduce the story of my life with JIA, but given that I was diagnosed around 21 years ago when I was just eight years old, I thought it would be best to start from the beginning and the earliest thing I can remember. And the earliest thing I can remember is waking up one morning and feeling unusually exhausted.

  • A History of JIA

    Although Juvenile Idiopathic Arthritis (JIA) had been described in England by Frederick Still, a paediatrician at Great Ormond St Hospital, in 1896 it wasn’t until 1946 that a specialised centre for the study of Juvenile Rheumatism was established at the Canadian Red Cross Memorial Hospital in Taplow, Berkshire.

  • Transition from paediatric to adult services

    My name is Daisy, I am 17 years old and I am starting the scary transition into adult services! I was diagnosed with rheumatoid arthritis when I was 12 years old and have been in paediatric care ever since, however at my next appointment I will be 18 (nearly 19 eek!) so I am at the transition period.

  • Eliza's story

    At 10 months old, baby Eliza took her first tentative steps towards my open arms. By 11 months, Eliza had stopped walking, stopped crawling, could no longer pull herself up to standing, barely slept and was constantly upset. A trip to the doctors and she were diagnosed with ‘a cold’ and I was asked “is this your first child?”.

  • The Williams Family

    We are the Williams Family, mum Tamsin, dad John, James (9), Charlotte (6). Onset of JIA for Charlotte began one morning in 2013 when she woke up complaining that her knee was hurting. I didn’t imagine anything was wrong so told her she would feel better when she got going (how I regret those words now!).